Hi! Welcome to Amyloidosis Awareness! My name is Jill and it is my goal to raise awareness of Amyloidosis around the world. After losing my mother Paula Freshwater, at a young age of 52, I’m hoping to be able to prevent others from experiencing the same by raising awareness and ultimately finding a cure for Amyloidosis.

Amyloidosis is a rare condition that absolutely requires early diagnosis. Knowledge about the disease is very limited and research is minimal. If you have additional resources where people can get more information, please also email me so that I can post them here. I hope to have a “race for the cure” type running race in the future and awareness items available soon. Please tell a friend about Amyloidosis today!

Basic Facts:

Amyloidosis is a rare disease that occurs when substances called amyloid proteins build up in your organs. Amyloid is an abnormal protein usually produced by cells in your bone marrow that can be deposited in any tissue or organ.

Amyloidosis can affect different organs in different people, and there are many types of amyloid. Amyloidosis frequently affects the heart, kidneys, liver, spleen, nervous system and gastrointestinal tract.

The exact cause of amyloidosis is unknown, and there's no cure for amyloidosis. However, therapies are available to help you manage your symptoms and limit the production of amyloid protein. Click here for more technical information.